Learning Objectives

By the end of this topic, the student should be able to:

  • Describe barriers to treatment and how they apply to opioid use and opioid use disorder.
  • Describe logistical barriers to services (e.g., stigma, financial constraints, work) that members of marginalized groups experience.

Key Concepts

  • Many barriers exist for individuals who seek treatment and are both internal (intrapersonal) and external (relational, logistic, and societal).
  • Identifying and understanding these barriers is a first step in supporting individuals with substance use disorders.
  • For women with substance use disorders, some barriers are unique and impede treatment:
    • Lack of childcare
    • Fear of stigma
    • Lack of family support
    • Lack of financial support
    • Comorbid mental health issues
  • Cultural barriers can also exist for members of visible minority groups when fear of bringing shame to the family can be a concern for those using opioids.
  • It is important to address the underlying challenges Indigenous peoples may face with social services and medical treatment (related to racism, trauma, poverty, homelessness, or other health determinants) to tackle the root causes of substance use.

Barriers to Treatment

Certain groups in society experience more barriers to receiving care for opioid use. Identifying and understanding these barriers is a first step in supporting individuals with substance use disorders.

While it is important to understand each individual’s experience and perspective on the barriers unique to their situation, categorizing lived experiences and personal perspectives is helpful to remove those barriers that prevent treatment.

Evidence icon

Rapp et al. (2006) surveyed 312 individuals about to enter treatment using the Barriers to Treatment Inventory, a 59-item self-report scale, to identify what they perceived as barriers to treatment.

The following broad categories with supporting quotations are reasons cited from the Rapp et al. (2006) sample. Participants were predominately male, over the age of 18 years, had previous experience with substance use and misuse, were not working, and were court referred for treatment.

Category A: Absence of Problem

  • I do not think I have a problem with drugs.
  • No one has told me I have a problem with drugs.
  • My drug use is not causing any problems.
  • I do not think treatment will make my life better.
  • I can handle my drug use on my own.
  • I do not think I need treatment.

Category B: Negative Social Support

  • I will lose my friends if I go to treatment.
  • Friends tell me not to go to treatment.
  • People will think badly of me if I go to treatment.
  • Someone in my family does not want me to go to treatment.
  • My family will be embarrassed or ashamed if I go to treatment.

Category C: Fear of Treatment

  • I have had a bad experience with treatment.
  • I am afraid of what might happen in treatment.
  • I am afraid of the people I might see in treatment.
  • I am too embarrassed or ashamed to go to treatment.

Category D: Privacy Concerns

  • I do not like to talk in groups.
  • I hate being asked personal problems.
  • I do not like to talk about personal problems with other people.

Category E: Time Conflict

  • I have things at home that make it hard for me to get to treatment.
  • It is hard to find a treatment program that fits my schedule.

Category F: Poor Treatment Availability

  • I am moving too far away from home to get treatment.
  • I do not know where to get treatment.
  • I have difficulty getting to and from treatment.

Category G: Admission Difficulty

  • I will have to be on a waiting list for treatment.
  • I have to go through too many steps to get into treatment.

Barriers Specific to Women

Some barriers faced by women with substance dependency issues are unique and can prevent them from seeking treatment. Women enter treatment at lower rates than men. Some of the contributing factors preventing women from seeking treatment were identified by Taylor (2010) as follows:

Lack of Childcare

  • Some women are unable to access treatment services because they do not have care for their children.
  • Compounding this is the stigma associated with a substance use disorder and women’s fear of losing their children to child welfare because they have a substance use disorder.
  • During the intake process, women often list the lack of care for their children as a deterrent to beginning treatment.
  • According to research, the children of women with substance use disorders are more likely to enter and remain in foster care longer than children who are in foster care as a result of abuse or neglect (Taylor, 2010).

Most addiction treatment programs do not provide childcare, and some will not admit women with children into treatment programs. Women are most likely to complete a long-term residential treatment when they are able to have their children with them.

Fear of Stigma

Women with substance use disorder experience a significant amount of stigma.

  • Women are more likely than men to experience shame and embarrassment in substance use treatment programs, and shame and embarrassment about their lives keep women from accessing treatment services.
  • There is a correlation between women with substance use disorder and those with a history of sexual abuse (which may have led to other illegal activities such as prostitution and drug-selling or drug-using behaviours).
  • Negative attitudes of health and social service providers and responses that stigmatize women can deter them from accessing care (Carter, 2002).

Lack of Family Support

  • Women tend to lose the support of family members because of their substance use and other associated behaviours (e.g., stealing, prostitution).
  • Women are more likely than men to experience disapproval from family and friends about engaging in treatment programs.
  • If a woman started using because of a relationship with a man who was also using, treatment may compromise this relationship.

Lack of Financial Support and Treatment Accessibility

  • The cost of private treatment is prohibitive to most people.
  • Because of a lack of gender equality in the workforce, women are less likely to be able to afford treatment programs.
  • Subsidized treatment programs typically have long waitlists.

Co-occurring Substance Use and Mental Health Issues

  • Women with substance use disorder are more likely than their male counterparts to have experienced trauma such as sexual assault, incest, and sexual violence. They are also more likely to have experienced domestic violence, homelessness, and victimization.
  • Between 30 and 59 percent of women with substance use disorders are also experiencing posttraumatic stress disorder (Cohen & Hein, 2006)
  • Up to 80 percent of women seeking treatment for substance use report sexual and/or physical assault (Khoury et al., 2010).
  • Women with substance use disorders are more likely than men to have mental health issues such as depression, anxiety, eating disorders, and low self-esteem.
  • Some treatment facilities are not prepared or equipped to treat co-occurring mental health issues.

Cultural Barriers to Treatment

Two other groups mentioned in the literature regarding barriers to treatment are Asian Americans and those who live in the Pacific islands, who underuse substance abuse treatment services (Le Meyer et al., 2009; Yu et al., 2009). SAMHSA (2004) reported that these two groups have high rates of substance use compared to other ethnic groups in the United States.

Evidence icon

Fong and Tsuang (2007) identified that cultural factors may prevent Asian Americans from seeking treatment as a result of embarrassment or shame.

  • This group reported avoiding substance abuse treatment “because revealing an SUD to the community may bring shame to their family, and family members pressure the individual with an SUD to try to solve the problem within the family” (Sakai et al., 2005; Park et al., 2010).
  • Fong and Tsuang (2007, p.57) added that the reluctance to seek outside assistance reflects the “family’s inability to solve the situation and may be inconsistent with the cultural mandate to maintain an appearance of harmony within the family.”

Another study identified that barriers to supporting individuals with substance use disorder included being unfamiliar with the treatment process and worrying about the impacts of treatment on an individuals’ ability to meet family obligations (Masson et al., 2013).

  • Conversely, some families in the study did see the merit of substance abuse treatment and pressured the substance user to enter and complete treatment (Masson et al., 2013).

Barriers Specific to Indigenous Peoples

Indigenous peoples also experience many barriers in accessing treatment for opioid use disorder. Differences in culture and approaches to harm reduction are one barrier to treatment faced by Indigenous peoples.

Western harm reduction approaches (such as safe consumption sites, clean needle distribution, naloxone, and opioid substitution therapy) can be useful; however, for many Indigenous peoples, harm reduction is a way of life, not tied to substance use but “embedded within traditional knowledge systems that see the spiritual world, the natural world, and humanity as inter-related” (Interagency Coalition on AIDS and Development, 2019, p. 7).

In 2019 the Interagency Coalition on AIDS and Development noted in a report titled Indigenous Harm Reduction = Reducing the Harms of Colonialism that

“the drugs alone are not the crisis, and as long as we continue to focus just on the drugs, we will see one [crisis] fall and another rise up in its place. The real crises [in First Nations, Inuit and Métis communities] are the historic and current factors [of colonization] that place some populations at higher risk of harmful drug use than others”
(Anderson & Champagne, 2018, as cited in Interagency Coalition on AIDS and Development, 2019, p. 5)

Additionally, not all First Nations, Inuit, or Métis, or communities and individuals within each of these groups, agree that harm reduction is a valid or viable approach to treating harmful use of substances.

Within the Indigenous community, women with substance use issues report difficulties using conventional systems of care. These barriers include:

  • fear of forced treatment or criminal prosecution,
  • fear of losing custody of children,
  • lack of treatment readiness,
  • coexisting mental illness,
  • guilt,
  • denial or embarrassment regarding their substance use,
  • stigma, and
  • lack of transportation (Curet & His, 2002).

Questions

What are some systemic barriers women can face in receiving treatment for opioid use or opioid use disorder?


In collective societies, where the family plays a more pivotal role, a person may not seek treatment for which of the following reasons?


Is there a common understanding among Indigenous peoples that abstinence is the preferred route of treatment.


References

Carter, C. S. (2002). Perinatal care for women who are addicted: Implications for empowerment. Health & Social Work, 27, 166–174.

Cohen, L. R., & Hien, D. A. (2006). Treatment outcomes for women with substance abuse and PTSD who have experienced complex trauma. Psychiatric Services, 57(1), 100–106. https://doi.org/10.1176/appi.ps.57.1.100

Curet, L. B., & His, H. C. (2002). Drug abuse during pregnancy. Clinical Obstetrics and Gynaecology, 45, 73–88.

Fong, T., & Tsuang J. (2007). Asian-Americans addictions and barriers to treatment. Psychiatry, 4, 51–59. http://www.innovationscns.com/

Interagency Coalition on AIDS and Development. (2019). Indigenous harm reduction = Reducing the harms of colonialism [Policy brief]. http://www.icad-cisd.com/pdf/Publications/Indigenous-Harm-Reduction-Policy-Brief.pdf

Khoury, L., Tang, Y. L., Bradley, B., Cubells, J. F., & Ressler, K. J. (2010). Substance use, childhood traumatic experience, and posttraumatic stress disorder in an urban civilian population. Depression and Anxiety, 27(12), 1077–1086. https://doi.org/10.1002/da.20751

Le Meyer, O., Zane, N., Cho, Y., & Takeuchi, D. (2009). Use of specialty mental health services by Asian Americans with psychiatric disorders. Journal of Consulting and Clinical Psychology, 77, 1000–1005. https://doi.org/10.1037/a0017065

Masson, C., Shopshire, M., Sen, S., Hoffman, K., Hengl, N., Bartolome, J., McCarty, D., Sorensen, J., & Iguchi, M. (2013). Possible barriers to enrollment in substance abuse treatment among a diverse sample of Asian Americans and Pacific Islanders: Opinions of treatment clients. Journal of Substance Abuse Treatment, 44(3), 309–315. https://doi.org/10.1016/j.jsat.2012.08.005

National Abandoned Infants Assistance Resource Center. (2008). Women with co-occurring mental illness and substance abuse. Journal of Addictions Nursing, 19(2), 93–100. https://doi.org/10.1080/10884600802111655

Owens, M., Chen, J., Simpson, T., Timko, C., & Williams, C. (2018). Barriers to addiction treatment among formerly incarcerated adults with substance use disorders. Addiction Science & Clinical Practice, 13(19). https://doi.org/10.1186/s13722-018-0120-6

Park, S. Y., Shibusawa, T., Yoon, S. M., & Son, H. (2010). Characteristics of Chinese and Korean Americans in outpatient treatment for alcohol use disorders: Examining heterogeneity among Asian American subgroups. Journal of Ethnicity in Substance Abuse, 9, 128–142. https://doi.org/10.1080/15332641003772660

Rapp, R., Xu, J., Carr, C., Lane, D., Wang, J., & Carlson, R. (2006). Treatment barriers identified by substance abusers assessed at a centralized intake unit. Journal of Substance Abuse Treatment, 30(3), 227–235. https://doi.org/10.1016/j.jsat.2006.01.002

Sakai, J. T., Ho, P. M., Shore, J. H., Risk, N. K., & Price, R. K. (2005). Asians in the United States: Substance dependence and use of substance-dependence treatment. Journal of Substance Abuse Treatment, 29, 75–84. https://doi.org/10.1016/j.jsat.2005.04.002

Smye, V., Browne, A., Varcoe, C., & Josewski, V. (2011). Harm reduction, methadone maintenance treatment and the root causes of health and social inequities: An intersectional lens in the Canadian context. Harm Reduction Journal, 8(17). https://doi.org/10.1186/1477-7517-8-17

Taylor, O. D. (2010). Barriers to treatment for women with substance use disorders, Journal of Human Behavior in the Social Environment, 20(3), 393–409, https://doi.org/10.1080/10911351003673310

Yu, J., Clark, L., Chandra, L., Dias, A., & Lai, T. (2009). Reducing cultural barriers to substance abuse treatment among Asian Americans: a case study in New York City. Journal of Substance Abuse Treatment, 37, 398–406. https://doi.org/10.1016/j.jsat.2009.05.006